Umbrella HEART NL (Umbrella HEreditary heARt disease daTabase of the Netherlands)

Early recognition and treatment of inherited cardiac conditions, both of patients and of symptom free relatives, can save lives.

To enable successful prevention and treatment, genetic data and long-term clinical outcomes of large patient groups need to be studied.

However, currently in the Netherlands, this data is spread over many different hospitals and registries and not automatically extracted from patient records.

We aim at developing a national database that automatically extracts data and acts as an umbrella resource for existing data(bases) used in research and diagnostics to stimulate combination and re-use of data to improve cardiogenetic patient care.