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Active NON-SBIR/STTR RPGS NIH (US)

A Continuing Education Intervention to Address Ableism Among Obstetric Clinicians Providing Perinatal Care

$7.39M USD

Funder EUNICE KENNEDY SHRIVER NATIONAL INSTITUTE OF CHILD HEALTH & HUMAN DEVELOPMENT
Recipient Organization Brandeis University
Country United States
Start Date Sep 01, 2024
End Date Aug 31, 2029
Duration 1,825 days
Number of Grantees 2
Roles Co-Investigator; Principal Investigator
Data Source NIH (US)
Grant ID 10992861
Grant Description

PROJECT SUMMARY The notion that disabled people would seek pregnancy and motherhood defies long-held social norms and is fraught with echoes of the eugenics movement of early 20th century America. Nevertheless, pregnancy and parenthood are increasingly common among disabled people. Despite the increasing numbers of disabled

women having babies, obstetricians often have little training in how best to provide high quality care to this diverse population, documented through perspectives of both obstetric clinicians themselves and women with disabilities. Disabled women often experience worse maternal and child health outcomes than their

nondisabled peers. Barriers to optimal care include lack of training and disability knowledge of obstetric clinicians; lack of professional guidelines for providers; provider unwillingness to care for women with disabilities; inaccessible equipment and facilities, poor communication, and ableist attitudes and practices

among obstetric health care providers and staff. Furthermore, emerging research suggests that ableist and discriminatory experiences in reproductive care may disproportionately affect disabled women of color. Research, both with disabled women and obstetricians, has identified recommendations for improving care,

however, the critical next step have yet to be taken – designing an educational intervention to address these concerns and prepare obstetricians to provide inclusive care. This study will develop an online continuing education program for practicing obstetricians that addresses ableism and structural ableism in perinatal and postpartum care. The study will first conduct focus

groups and key informant interviews to identify essential content and optimal approaches for educating providers about mitigating ableist attitudes, practices, and policies, structural access barriers, and providing perinatal care to a diverse population of disabled patients. Based on these findings, the study team will design

an online continuing medical education program and conduct a randomized controlled trial with 200 obstetric providers. Participants will complete assessments prior to training, and at three- and 9-months following completion. The study will measure change in ableist attitudes and clinical policies and practices. Knowledge

acquisition, satisfaction with course content, and usability will similarly be evaluated. We will also interview 20 participants about their experiences and revise the program accordingly. We will collaborate with the American College of Obstetricians and Gynecologists (ACOG) to disseminate the final program to practicing

obstetricians. This project directly addresses priorities identified by the funding agency to develop and test interventions at a community or health systems level to mitigate adverse health effects of ableism and structural ableism. The expected outcome of this project is an innovative educational intervention to improve

provider knowledge to mitigate ableism in perinatal care.

All Grantees

Brandeis University

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