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Research in Europe and Diversity Inclusion
| Funder | European Commission |
|---|---|
| Recipient Organization | Servicio Madrileno de Salud |
| Country | Spain |
| Start Date | Jan 01, 2025 |
| End Date | Dec 31, 2030 |
| Duration | 2,190 days |
| Number of Grantees | 73 |
| Roles | Participant; Associated Partner; Third Party; Coordinator |
| Data Source | European Commission |
| Grant ID | 101166227 |
Grant Description
The public-private partnership, READI, seeks to help clinical studies (CS) to finally serve the complete general population, and therefore more patients.
To date CS have struggled to recruit and retain participants from diverse backgrounds and communities, such as marginalized or disadvantaged groups (e.g., sexual, gender, age, cultural, and socioeconomic cohorts). The resulting knowledge gaps entrench or increase health disparities.
The READI consortium strives to tackle these challenges by fostering a more cohesive and integrated CS ecosystem for underserved (US) and underrepresented (UR) communities. It will actively connect all key stakeholders who can facilitate access to a wide range of patient populations.
It will provide these stakeholders with the necessary tools, training programs, and approaches essential for the recruitment and retention of US/UR patients in CS.In addition, it will design, build and implement a digital platform which is patient-centred, sustainable, open and innovative.
This will foster improved access to CS information and READI tools, while also supporting patient connections with the created communities. Finally, at least 4 CS will be used for testing the effectiveness of the developed tools and approaches.
READI has a three-fold objective: to help US/UR communities overcome CS participation barriers (e.g., lack of information/awareness, mistrust, poor communication, geographic limitations, prejudice), which in turn will improve research of many diseases and conditions, preventative care and treatment effectiveness in different demographic groups, and better serve society.
READI’s success will draw from its interdisciplinary, multi-stakeholder, consortium composition of 73 organizations from 18 countries, with key expertise in drug development and CS (design and operations), engagement strategies for US/UR populations, digital platform development, training and capability building initiatives, effective communication and dissemination, long-term sustainability, ethics and regulatory affairs.
All Grantees
Ecrin European Clinical Research Infrastructure Network; Ablynx Nv; Aarhus Universitet; Pfizer Polska Sp. Z O.O.; The University Court of the University of Aberdeen; European University - Cyprus Ltd; Lilly Deutschland Gmbh; Edex - Educational Excellence Corporation Limited; Janssen Cilag Limited; Abbvie Inc; Fundacio Privada Per A la Recerca I la Docencia Sant Joan de Deu; Janssen-Cilag Gmbh; Medicines and Healthcare Products Regulatory Agency; Klinikum Der Universitaet Zu Koeln; Zabala Innovation Consulting Sa; Glaxosmithkline Research & Development Limited; Sanofi Winthrop Industrie; Takeda Pharmaceuticals International Ag; Stichting Vu; Ucb Biopharma; Forum Des Patients Europeens; Stichting Eupati Foundation; Fondazione Penta Ets; Pagalbos Onkologiniams Ligoniams Asociacija; Hl7 International Fondation; Digestive Cancers Europe Dice; Nacionalinis Vezio Institutas; Novartis Pharma Ag; Astrazeneca Ab; Esperity; F. Hoffmann-la Roche Ag; The Synergist; Cdisc Europe Foundation Fondation; Boehringer Ingelheim B.V.; Fundacion 29 de Febrero; Servicio Madrileno de Salud; Fundacion Centro de Tecnologias de Interaccion Visual Y Comunicaciones Vicomtech; National Institute for Health and Care Excellence; Breakthrough T1D; Trial Nation; Fundatia Youth Cancer Europe; Fundacio de Recerca Clinic Barcelona-Institut D Investigacions Biomediques August Pi I Sunyer; Universitair Medisch Centrum Utrecht; Socialit Software E Consulting Srl; Boehringer Ingelheim Internationalgmbh; Fundacion Para El Fomento de la Investigacion Sanitaria Y Biomedica de la Comunitat Valenciana; Shine 2Europe Lda; Aarhus Universitetshospital; Fundacion Para la Investigacion Biomedica Del Hospital Universitario de Getafe; Midtjyllands Eu Kontor Forening; Fundacion Para la Investigacion Biomedica Del Hospital Universiatrio la Paz; Pfizer Inc; Almirall Sa; Information Technology for Translational Medicine (Ittm) Sa; Viiv Healthcare Uk Ltd; Sanofi Pasteur Sa; Sanofi-Aventis Recherche & Developpement; Chiesi Farmaceutici Spa; Irish Platform for Patients' Organisations Science and Industry Limited By Guarantee; Sanofi; Global Heart Hub Company Limited By Guarantee; Novo Nordisk A/S; Sanofi Medley Farmacêutica Ltda; Eli Lilly and Company Ltd; Synapse Research Management Partners Sl; Janssen Biologics Bv; Eli Lilly and Company; European Aids Treatment Group Ev; Synergist Services; Bristol-Myers Squibb Company Corp; Janssen Pharmaceutica Nv; Pfizer R&D Uk Limited; Curewiki
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