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Quality, Utility and Maturity Measured; Developing a Data Quality and Utility Label for HealthData@EU
| Funder | European Commission |
|---|---|
| Recipient Organization | Instituto Aragones de Ciencias de la Salud |
| Country | Spain |
| Start Date | Jan 01, 2024 |
| End Date | Jun 30, 2026 |
| Duration | 911 days |
| Number of Grantees | 35 |
| Roles | Participant; Associated Partner; Third Party; Coordinator |
| Data Source | European Commission |
| Grant ID | 101137057 |
Grant Description
Context: Data users (i.e., researchers, innovators, regulation agencies and policy-makers) need high-quality data.
In HealthData@EU, data holders are expected to make their datasets available for secondary use, providing a notion of their quality and utility and the maturity of their data quality procedures. In article 56 in the HealthData@EU proposed regulation, this notion would take the form of a label.
Goal: Overall, QUANTUM aims at developing and implementing a label mechanism that could be ideally adopted in the future [email protected]: QUANTUM builds on 5 technical work packages (WP). WP1 conceptualises and provides technical specifications for a data quality, utility, and maturity label. WP2 designs and tests, at small-scale, the label.
WP3 implements the labelling mechanism in a number of data holders.
WP4 engages the data quality users’ community; and, WP5 outreaches other interested parties, including other initiatives building [email protected] results: a) A common concept of datasets Quality and Utility and Data holders’ Maturity; b) Technical specifications for the label (Deliverable D1.1. and D1.2); c) A conformance checking tool that yields the label (D2.1); d) An implementation report of the label mechanism (D3.1); e) Recommendations for a large-scale implementation of the QUANTUM label mechanism (D3.2); and, f) The QUANTUM Exchange Platform and Academy (D4.2 and D4.3) as instruments for capacity building.Consortium: For this purpose, 27 beneficiaries, 5 affiliated entities and 3 associated partners.
The composition of the Consortium seeks to reflect the different roles and institutions in the governance of the HealthData@EU; virtually consider all types of data and science of interest; and gather the expertise of previous outstanding projects in the domain
All Grantees
Ecrin European Clinical Research Infrastructure Network; Hus-Yhtyma; Institut National de la Sante Et de la Recherche Medicale; Biobanks and Biomolecular Resources Research Infrastructure Consortium (Bbmri-Eric); Koninklijke Nederlandse Akademie Van Wetenschappen - Knaw; Nacionalni Institut Za Javno Zdravje; Gesundheit Osterreich Gmbh; European University Hospital Alliance; Assistance Publique Hopitaux de Paris; Istituto Superiore Di Sanita; Spms - Servicos Partilhados Do Ministerio Da Saude Epe; Stichting Health-Ri; Cessda Eric; Direktorat for E-Helse; Health Data Research Uk; University of Essex; Centre Hospitalier Universitaire de Toulouse; Terveyden Ja Hyvinvoinnin Laitos; Plateforme Des Donnees de Sante; Chu Hopitaux de Bordeaux; European Digital Health Academy Ggmbh; Hrvatski Zavod Za Javno Zdravstvo; Vib Vzw; Health Information and Quality Authority; Universidade Do Porto; Hospices Civils de Lyon; Bundesinstitut Fur Arzneimittel Und Medizinprodukte; Universitat Politecnica de Valencia; Erasmus Universitair Medisch Centrum Rotterdam; Digitaleurope Aisbl*; Ethniko Kentro Koinonikon Erevnon; Universita Cattolica Del Sacro Cuore; Sciensano; The European Institute for Innovation Through Health Data; Instituto Aragones de Ciencias de la Salud
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