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Quality of Life in Oncology: measuring what matters for cancer patients and survivors in Europe
| Funder | European Commission |
|---|---|
| Recipient Organization | Fondazione Irccs Istituto Nazionale Dei Tumori |
| Country | Italy |
| Start Date | Jan 01, 2023 |
| End Date | Dec 31, 2026 |
| Duration | 1,460 days |
| Number of Grantees | 27 |
| Roles | Participant; Associated Partner; Third Party; Coordinator |
| Data Source | European Commission |
| Grant ID | 101096362 |
Grant Description
EUonQoL aims to develop, pilot and validate the EUonQoL-Kit, a patient-driven, unified system for the assessment of quality of life (QoL) based on evaluations and preferences of cancer patients and survivors.
The EUonQoL-Kit will be developed from a patient perspective, administered digitally, available in the EU27 and Associated countries languages, and applicable in future, periodic surveys to contribute to the EU’s mission on cancer.
At the core of the EUonQoL there is the adoption of a multistakeholder, co-design methodology, engaging patient representatives, healthcare professionals, administrators, policymakers, and citizens in all project related activities. Existing QoL tools will be reviewed, scoping all relevant sources.
This review will be used in the context of the codesign consensus with stakeholders’ and patients’ preferences to identify gaps and establish all QoL dimensions that are relevant from the perspectives of patients, clinicians, and society.
A multidisciplinary researcher panel, composed by the most talented experts, will develop the EUonQoL-Kit that will be validated in a pilot survey using digital data collection within month 24 of the project. A total of 4,000 cancer patients and survivors will be enrolled through a network of EU cancer centers.
An analysis of factors potentially impacting on cancer patients and survivors QoL, will also be performed.
Implementation and exploitation strategies, as well as the linkage with other Cancer Mission projects and actions will be explored to develop future periodic surveys.
EUonQoL is composed by research institutions, cancer centers, as well as scientific, professional, and patient representative organizations involved in cancer research, all with extensive experience and robust scientific background in the development of self-report QoL measures.This partnership fuels the ambition of EUonQoL to translate QoL information into future changes in cancer care policy and clinical practice.
All Grantees
Region Hovedstaden; Digital Institute for Cancer Outcomes Research; Institut Gustave Roussy; Istituto Europeo Di Oncologia Srl; Sporedata Ou; Organisation of European Cancer Institutes; Federazione Italiana Delle Associazioni Di Volontariato in Oncologia; Stichting Nederlands Instituut Voor Onderzoek Van de Gezondheidszorg; Unicancer; European Organisation for Research and Treatment of Cancer Aisbl; European Cancer Organisation; The Leeds Teaching Hospitals National Health Service Trust; Oslo Universitetssykehus Hf; Deutsches Krebsforschungszentrum Heidelberg; Alleanza Contro Il Cancro; University of Leeds; European Association for Palliative Care; Medizinische Universitat Innsbruck; Stichting Het Nederlands Kanker Instituut-Antoni Van Leeuwenhoek Ziekenhuis; Institut Curie; Federatia Asociatiilor Bolnavilor de Cancer; Sdruzhenie Asotsiatsia Na Patsientite S Onkologichni Zabolyavania I Priyateli; Universita Degli Studi Di Milano; Fundacio Institut Hospital Del Mar D Investigacions Mediques; Istituto Nazionale Tumori Fondazione Pascale; Fondazione Irccs Istituto Nazionale Dei Tumori; Istituti Fisioterapici Ospitalieri
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