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Intelligent Ecosystem to improve the governance, the sharing and the re-use of health Data for Rare Cancers
| Funder | European Commission |
|---|---|
| Recipient Organization | Fondazione Irccs Istituto Nazionale Dei Tumori |
| Country | Italy |
| Start Date | Sep 01, 2022 |
| End Date | Aug 31, 2026 |
| Duration | 1,460 days |
| Number of Grantees | 26 |
| Roles | Participant; Third Party; Coordinator |
| Data Source | European Commission |
| Grant ID | 101057048 |
Grant Description
The main objective of this project is to establish a Data Space for rare cancers (RC) that will make possible the re-use of existing multisource health data (cancer registry data, national registries, data from biobanks etc.) across European healthcare systems leveraging emerging interoperability technologies and AI approaches.
The realized ""Rare Cancer Data Ecosystem"" is expected to improve the quality and the organization of RC patients care, and to increase knowledge on rare cancers advancing health research, so that all patients have equal access to high quality specialist care.
The project approach will be experienced in the framework of the European reference network for rare adult solid cancers (EURACAN).
All Grantees
Narodowy Instytut Onkologii Im. Marii Sklodowskiej-Curie -Panstwowy Instytut Badawczy; Stichting Integraal Kankercentrum Nederland; Digital Institute for Cancer Outcomes Research; Fundacion Publica Galega de Investigacion Biomedica Inibic; Instituto Investigacion Sanitaria Fundacion Jimenez Diaz; Ethniko Kentro Erevnas Kai Technologikis Anaptyxis; Nederlandse Organisatie Voor Toegepast Natuurwetenschappelijk Onderzoek Tno; Hl7 International Fondation; Assistance Publique Hopitaux de Paris; Centre de Lutte Contre Le Cancer Leon Berard; Oslo Universitetssykehus Hf; Inferenze Soc. Coop.; Alleanza Contro Il Cancro; Masarykuv Onkologicky Ustav; Fakultni Nemocnice V Motole; Universitaetsklinikum Essen; Västra Götalandsregionen; Fondazione Bruno Kessler; Clininote Spolka Z Ograniczonaodpowiedzialnoscia; Universiteit Utrecht; Engineering - Ingegneria Informatica Spa; Universidad de la Iglesia de Deusto Entidad Religiosa; Multimed Engineers Srl; European Centre for Certification and Privacy; Fondazione Irccs Istituto Nazionale Dei Tumori; Universidad Politecnica de Madrid
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